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About Crouzon Syndrome

Crouzon Syndrome is a congenital defect, which affects the skull and facial bone area. It is a form of multi-craniosynostosis (fused bones of the skull). Portions of the skull's plates become fused thus restricting the brain's growth in that area. The results are: severe deformities to the midface. Problems can develop from an infant to beyond and affect breathing, feeding, vision, hearing and brain development.

Characteristics often associated with Crouzon Syndrome:

  • Flattened back and top of head
  • Flattened forehead
  • Shallow eye sockets
  • Protruding eyeballs
  • Beaked like nose
  • Protruding lower jaw
  • Overcrowding of teeth
  • Narrow high arched palate
  • Cleft Palate

Problems which can occur with Crouzon Syndrome:

  • Hearing loss
  • Absence of ear canals
  • Deformity of middle ears
  • Vision problems
  • Crossed eyes
  • Involuntary movement of eyes
  • Curvature of the spine
  • Vertigo and dizziness
  • Facial deformity
  • Deformity of limbs
  • Webbed toes
  • Minear's Disease
Because of the variety of problems associated with Crouzon Syndrome, children and teens with Crouzon Syndrome should be evaluated by a craniofacial team. Adults considering revisions should undergo an evaluation as well.

A Craniofacial team includes the following:

  • Plastic surgeon (craniofacial reconstructive)
  • Neurosurgeon (craniofacial)
  • Otolarynologist (ear/nose/throat specialist)
  • Audiologist (hearing)
  • Ophthalmologist (eyes)
  • Orthodontist (teeth)
  • Geneticist
  • Psychologist
  • Social Worker

Click here for a list of Treatment Centers

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